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Anyone have kids with a "tic disorder"?
Anyone here have any experience with a tic disorder? I suspect my daughter might have tourette syndrome or some other kind of tic disorder because of this movement she keeps doing with her head. It's kind of like a head nod/bob thing and she does it every few minutes. I have asked her why she does it, and she says she doesn't know, she "just has to do it".
I've made a dr appt for later this month, but wondered if anyone here has been through something similar?
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Yes! One of my kids has gone through various tics, lasting a few weeks to a few months at a time, and my research tells me it's not rare (about 10 people per 1,000) and usually not a sign of Tourette syndrome. I have to admit, though, when my child said, "I just have to do it" when I asked about the eyelid-flicking, I silently freaked out.
A doctor's visit is always a good idea, of course, but the advice I received was to ignore it as much as possible and reduce stressors as much as I could. I belated realized that tics run in my family; my grandmother was a compulsive throat clearer, and my mother (who lives with us) now does the same thing. I noticed that the incident of the tics in my child decreased markedly when I stopped working nights outside the home, and that they ramp up again at the beginning of the school year.
Good luck!
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Emily
I had forgotten I posted this here, and a couple weeks ago posted in the "Special Needs" forum as well. Since my original post, we've learned that my daughter does in fact have Tourette Syndrome, but she's coping well. We are so grateful that (at least right now) her tics are subtle and most people, if they notice them, just chalk it up to quirkiness ;-)
Opening up with her and discussing it has helped her a lot, to realize that there's a reason she feels like she "has" to do those things and IT'S OK! We watched a great video provided by the Tourette Syndrome Association...kind of made "by kids, for kids" where other kids with TS explain their feelings and methods for coping.
As a result, my daughter is much more willing to discuss it, and has shared some other things with me that seem rather OCD (which is not uncommon for TS kids) but nothing that isn't manageable. But putting a label on it makes her feel better, because she felt "weird" since she is the only kid she knows that (for example) traces the outline of the design on the fence at school before she can play at recess, or has to touch things a certain way.
Obviously we hope to avoid medication and would only consider that if her tics or other symptoms were to become much more pronounced. Right now, she's just happy to have an answer, and is comfortable explaining people who pry that it's Tourette Syndrome and "not a big deal at all."